autoimmune · chronicillness · disability · fibromyalgia · mentalhealth · Unrest

Join the movement – It’s Time For Unrest

Join The Movement – Its Time For Unrest

A few days ago, I was contacted by an amazing lady by the name of Jennifer Brea, who asked me to review Unrest.  

 

Of course, I was more than happy to, as I was previously aware of Jen as I had seen her TED talk about ME/CFS, something she was diagnosed with personally.

Before I go into telling you about the film, I just want to say how utterly inspired I am by Jen and everyone out there that helped make the film.

As someone who also suffers from chronic fatigue and other issues (thyroid disease, fibromyalgia, Coeliac,) it is so nice to know how many wonderful and amazing people there are out there that are trying to get our conditions noticed and trying to get people to listen.

When I first started blogging and set up The Thyroid Damsel, my goal was not to make money like a lot of bloggers but to raise awareness and get people talking. So I’m thrilled when other people get attention drawn to our illnesses, people like Jen.

Unrest Review

About Unrest

As previously mentioned, Jen was diagnosed with ‘conversion disorder‘ originally and then later, Chronic Fatigue Syndrome.

At times she was in agonising pain, lost the ability to walk and even talk. Words would come out jumbled and incoherent.

Rather than just sit and worry about her condition, Jen started filming and documenting all her symptoms, because she believed that “someone should see this.

Unrest is the result of these documentations.

Jen also made contact with other ME/CFS sufferers that she had discovered online, and realised that her illness was not as rare as her Doctors had made it out to be.

An estimated 15-30 million people across the globe have M.E.

At least 1,000,000 Americans, 250,000 British people, 100,000 Australians, and 400,000 Canadians have ME. An estimated 75-85% of them are women and 80-90% of them are undiagnosed.

Many of the people that Jen contacted had similar symptoms, many, including Jen, are at times bedridden. There are others who still have the illness but are able to work or have cognitive issues. The condition varies from person to person.

You can watch the Trailor of Unrest here:

I was absolutely astounded after watching the documentary, especially after witnessing some of the existing practices that go on still in countries such as Denmark (I will not mention what this is, as I don’t want to spoil it for people who are yet to watch).

Despite being moved, and upset by the amount of misunderstanding and lack of funding that is given to research into conditions such as ME/CFS, Thyroid and autoimmune diseases, I also felt strangely uplifted. It was nice to finally see someone using their existing notoriety and ability, to draw media attention to our plight. We are Missing, and we need to be found. If you have not already heard of the Millions missing campaign, I can not stress how important it is to get involved in this.

We all need to be like Jen, and we all need to start joining these campaigns, and getting our voices heard again.

Jen shows us her most private, and at times very painful moments, both physically and emotionally, and by doing so, she gives millions of people the chance to witness first hand what life is like with an ‘invisible illness.’

As you will discover in the film, ME/CFS used to be called Hysteria or Yuppie Flu and ‘conversion disorders’ such as Fibromyalgia and Lupus, also had stigmas attached to them. This is partly why many medical professionals believed that the conditions didn’t actually exist or were caused by mental health issues such as Stress.

Jens Husband Omar explains this perfectly. I myself, have come across this very same problem in the Doctors/ Hospital where “If you say too little they cant help you, and if you say too much they think its a mental problem“.

When it comes to these types of illnesses, this sentence from Omar sums it in the best way.

I thoroughly enjoyed watching the documentary and have shown it too many people. 

You can buy/rent the film online. Click the image below. 

Unrest Review

I would also urge you to get involved with the Millions Missing Campaign as well.

Once again, Thank you to Jen and Omar, and everyone involved with making the film. Thank you for bringing to light what life is like for people with ME/CFS and other illnesses.

The more awareness we can raise, and the more we talk and get involved, hopefully, eventually, we will no longer be missing.

May 12 is designated as ME/CFS and Fibromyalgia International Awareness Day.

You can donate to The Thyroid Damsel and help keep the blog going – 10% of your donation will go towards Thyroid UK!


Also published on Medium.

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