autoimmunedisease · bladder issues · cystitis · fibromyalgia · interstitial cystitis

Bladder Issues, Fibromyalgia & Me

Please note this post may contain content that some people may find is TMI!

Out of the number of issues I have gone through with my autoimmune diseases and muscle problems, one of the worst (and newest); problems I have come up against, is not sleeping at night due to frequent bathroom trips!

I have had ‘regular’ cystitis before, caused by using different shower gels etc and that was bad enough.

This new bladder issue is a whole new ball game and something that is vastly becoming a massive pain in my ass!. It’s also something that literally makes me want to curl up in a ball and cry.

It first started about a week ago. I wasn’t feeling too well but passed it off as just another ‘flare’ up. After a few days of feeling really crappy, I decided to go and get checked at the doctor’s, just in case.

I told her I had had a more than a few trips to the bathroom, and could I be feeling like this because I might have a urine infection. The doctor agreed this might be the case and I was prescribed a 3-day course of antibiotics (nitrofurantoin).

I took the full course as advised and thought I was starting to feel a bit better.

3 days later though, I realized, to my detriment, I wasn’t over the worst of it.

Two nights ago, I went to bed as usual around 11 pm. I had started to get a feeling like a swelling in my bladder region. It wasn’t particularly painful, more uncomfortable, I assumed it would go away on its own. This is an estimated timeline of what happened that night!!

11.15pm – Bathroom trip

11.20pm – back in bed

12.00am – Bathroom trip

12.05am – back in bed

1.00am – bathroom trip

1.05am – back in bed

This went on and on all night.

The most sleep I had was 30 minutes at a time. I was absolutely shattered.

This didn’t feel like normal cystitis that I had had previously. I didn’t have the feeling like I needed to go to the toilet, but couldn’t, I was actually going to the bathroom and urinating every time.

I was going to the toilet and going for a wee. Every time I went to the toilet, I had a wee (sometimes a little bit, sometimes a bit more, but always going). As soon as I finished, I got the feeling like my bladder was filling up again, and by the time I got into bed, the need to go to the toilet increased. I tried to hold in the feeling and wait for it to subside, but I couldn’t.

My lower tummy started hurting and I was so tired. I feel physically drained the next day.

During the day the feeling seemed to ease a little bit, and I thought it was maybe just a one-time thing.

I went back to the doctors anyway just to get checked over.

I took a urine sample with me which was given the dipstick check. I was told I had a possible infection and needed antibiotics.

I explained to the Doctor I had already had antibiotics, but she insisted and gave me more, this time Metronidazole.

I went back home.

That night, I had the same problems. I went to bed at 11 pm, and proceed to wake up every 20/30 minutes. It was awful.

I eventually gave up and got up and watched TV.

What’s the point in being in bed when I can’t sleep?

The following day I had had enough. I didn’t want to bother the hospital straight away, so I decided to give the doctors one more go.

I saw a different doctor again to the first two times. She took my blood pressure, temperature and felt my abdomen (something neither of the other two doctors had done!)

She said I had a slight fever and was tachycardic and she thought the best thing would be to refer me to hospital straight away!

So, as is with all good medical stories, here I am stuck in the hospital again!

I’ve had scans and blood tests, been told that I have a UTI, and then told I don’t!

All in all, it’s been a very unfruitful stay.

I don’t know if this is just a really bad case of cystitis (it doesn’t feel like it), or if it is something more serious, or a condition called Interstitial Cystitis.

Interstitial cystitis is actually linked to Autoimmune conditions and more so Fibromyalgia. I’m hoping it isn’t this condition as frankly, I have enough to deal with and as far as I am aware, there isn’t actually a cure. It comes in flares and is exacerbated by certain triggers.

Anyway, back to the hospital scenario:-

Eventually, I got sent home, awaiting a bladder scan. Still none the wiser to what is wrong with me. Hopefully, I will be able to update you with some information when I hear!.

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