Please note this post may contain content that some people may find is TMI!
Out of the number of issues I have gone through with my autoimmune diseases and muscle problems, one of the worst (and newest); problems I have come up against, is not sleeping at night due to frequent bathroom trips!
I have had ‘regular’ cystitis before, caused by using different shower gels etc and that was bad enough.
This new bladder issue is a whole new ball game and something that is vastly becoming a massive pain in my ass!. It’s also something that literally makes me want to curl up in a ball and cry.
It first started about a week ago. I wasn’t feeling too well but passed it off as just another ‘flare’ up. After a few days of feeling really crappy, I decided to go and get checked at the doctor’s, just in case.
I told her I had had a more than a few trips to the bathroom, and could I be feeling like this because I might have a urine infection. The doctor agreed this might be the case and I was prescribed a 3-day course of antibiotics (nitrofurantoin).
I took the full course as advised and thought I was starting to feel a bit better.
3 days later though, I realized, to my detriment, I wasn’t over the worst of it.
Two nights ago, I went to bed as usual around 11 pm. I had started to get a feeling like a swelling in my bladder region. It wasn’t particularly painful, more uncomfortable, I assumed it would go away on its own. This is an estimated timeline of what happened that night!!
11.15pm – Bathroom trip
11.20pm – back in bed
12.00am – Bathroom trip
12.05am – back in bed
1.00am – bathroom trip
1.05am – back in bed
This went on and on all night.
The most sleep I had was 30 minutes at a time. I was absolutely shattered.
This didn’t feel like normal cystitis that I had had previously. I didn’t have the feeling like I needed to go to the toilet, but couldn’t, I was actually going to the bathroom and urinating every time.
I was going to the toilet and going for a wee. Every time I went to the toilet, I had a wee (sometimes a little bit, sometimes a bit more, but always going). As soon as I finished, I got the feeling like my bladder was filling up again, and by the time I got into bed, the need to go to the toilet increased. I tried to hold in the feeling and wait for it to subside, but I couldn’t.
My lower tummy started hurting and I was so tired. I feel physically drained the next day.
During the day the feeling seemed to ease a little bit, and I thought it was maybe just a one-time thing.
I went back to the doctors anyway just to get checked over.
I took a urine sample with me which was given the dipstick check. I was told I had a possible infection and needed antibiotics.
I explained to the Doctor I had already had antibiotics, but she insisted and gave me more, this time Metronidazole.
I went back home.
That night, I had the same problems. I went to bed at 11 pm, and proceed to wake up every 20/30 minutes. It was awful.
I eventually gave up and got up and watched TV.
What’s the point in being in bed when I can’t sleep?
The following day I had had enough. I didn’t want to bother the hospital straight away, so I decided to give the doctors one more go.
I saw a different doctor again to the first two times. She took my blood pressure, temperature and felt my abdomen (something neither of the other two doctors had done!)
She said I had a slight fever and was tachycardic and she thought the best thing would be to refer me to hospital straight away!
So, as is with all good medical stories, here I am stuck in the hospital again!
I’ve had scans and blood tests, been told that I have a UTI, and then told I don’t!
All in all, it’s been a very unfruitful stay.
I don’t know if this is just a really bad case of cystitis (it doesn’t feel like it), or if it is something more serious, or a condition called Interstitial Cystitis.
Interstitial cystitis is actually linked to Autoimmune conditions and more so Fibromyalgia. I’m hoping it isn’t this condition as frankly, I have enough to deal with and as far as I am aware, there isn’t actually a cure. It comes in flares and is exacerbated by certain triggers.
Anyway, back to the hospital scenario:-
Eventually, I got sent home, awaiting a bladder scan. Still none the wiser to what is wrong with me. Hopefully, I will be able to update you with some information when I hear!.